Update from Neurology appt Friday

hello All! I thought that I would write yesterday or even friday night, but that didnt happen. Yesterday was spent doing lots of filing and organizing and then we also did some grocery shopping. So, here I sit with my hubby and kids in the living room, watching a movie and so I thought I had better update the blog.
Carter is such a little fighter, he proved that again on friday when they had to hold him down to put many sticky's on his head in order to perform the EEG. He kicked, he screamed, he cried, he looked at me wondering why I wasnt helping him. It is so hard to sit there and try and calm him when other people are messing with him and he doesnt understand. The EEG took probably 20-25 minutes to do but altogether, (setting up and removing sticky's) it took about an hour. He did as good as any 3 year old would/could do. The tech that perfomed the EEG told me, 'I've been doing this for 25 years, those aren't seizures.' And immediately following the EEG we met with the Neurologist, Dr. Pavkovic. He confirmed that too, said no seizures, and really thinks that Carter's having some brain irritation because of his last 2 surgeries. The brain irritation is causing him to have some eye rolling, eye fluttering, little uncontrollable noises, etc. The Dr. is however referring Carter to an ENT specialist (check balance from ears) and then a Neuro Opthamologist (make sure he doesnt need glasses) just to cover all bases. I am going to be trying to set up both of those appointments plus another visit to the Neurosurgeon (Dr. Hellbusch). I am hoping to coordinate all three on the same day (in Omaha).
Now all we do is wait and pray. Please too be in prayer for Carter as sometimes his balance isnt what it should be and also sometimes he tells us that he needs tylenol. Yesterday he said "shunt hurt" but then laughed after saying so..He probably heard us say "does your shunt hurt?"..but it still makes us a little scared to hear him say that. Will update more if it comes available.
I just might add that I am so thankful for my parents help on Friday, because Cody had to work. They were there when I needed them and cant thank them enough. I needed support and everytime my parents have supported me and my family. Thank you Mom and Dad.
MERRY CHRISTMAS to all and God Bless, Love Jessica