Carter's Story

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This blog is a look into the life of our nearly six year old little boy, Carter. When I was just six months pregnant, an ultrasound detected that Carter's brain was missing its corpus callosum and he also had hydrocephalus. Doctors even told us that our little boy may not walk, talk, etc... but abortion was never a choice for us because we firmly believe that God does not make junk. We look at Carter now and praise God for the miracle he is! Carter loves to play, and he CAN walk and talk! Carter is continually proving himself to us, to our families and to his teachers. I have been priveleged to be able to stay home with Carter, Camden and Elliana since November of 2006 when Carter was born. I am so thankful I am here to hold his hand and face his challenges right along side of him. A mother's love only grows, this I know. Some days may be challenging but always worth it at the end of the day.

Carter

Carter
Born November 20, 2006

Thursday, December 17, 2009

Omaha Tomorrow

Well, tomorrow is the long anticipated day in Omaha. Seems like we have been waiting forever to go to this appointment with Carter's neurologist, Dr. Pavcovik. Carter first has an EEG there at Children's Hospital and then an appt. following to find out the results. Tonight we are supposed to keep him up an hour later and then tomorrow morning we are to wake him up an hour earlier, and then NO nap before his appt at 2:30 tomorrow. This could pose to be a very hard task! I guess they want him to be super tired, cause his brain is more likely to not function as well (isnt that the truth with all of us?)
So, lately something out of the ordinary has been happening. Carter cannot stand to watch Camden eat...cereal or even his little puffers. Carter gets sick, he gags. Its happened a handful of times now..so when its time to have Camden eat, Carter has to be in a completely different part of the house. I am not sure whu this is happening. It just started this last week. Is it his ACC (gag reflex) or is it because he has batteled a small bout of the flu? Is Carters equilibrium off? I am now also wondering that because his balance has seemed to regress in the past few days. Not horribly, but not great to see that happen in any circumstance. I just want to get figured out whatever is happening. Obviously something is happening. I wonder if it could be the length of his catheter (shunt)..because they put a longer one in his last surgery..is it hitting some part of the brain?- causing 'noises', his balance to suffer, his gagging? Is it that he is suffering from small seizures which may also do these very things? I dont know...but we WILL get to the bottom of this...for Carter's sake and for ours.
Will write more tomorrow night or saturday following some answers (we hope).
Thanks and God Bless, Jessica
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