Consuming Thoughts.

I am sitting alone in my kitchen in the quiet because Camden and Carter are both napping. Its nice to be in peace, but my head keeps thinking too much. As a Mom, it is natural to worry..As a mom of a special needs child, I worry even more. Carter brings me so much joy..That child is so special to me. I can't even begin to tell you just how special. I wanted him, even when I knew that he was maybe going to have problems, I WANTED him. He is such a blessing in my life and he has a PURPOSE. Some people may think that he doesnt know much, or that he doesnt always walk well..but that is not the case. Carter, if you would get to know him, could teach you more about life than some college professor. Carter has taught me to open my heart up to others, to love more. I never thought that I was close minded before Carter, but looking back- I was. Carter has taught me to never give up, to keep trying, to fight. Things have not come easily for him, but hes never stayed down after falling- he gets right back up. His personality is, let me try. Let me do it- on my own. But dont get me wrong, if he needs help- he will ask. Carter can be very passionate with the things he loves, ie: cars, swimming, walking. I have noticed how he studies things..He probably has 50 hotwheels and 1/2 of them he seems to know what they are...corvette (he says corbette), trailblazer, toyota, cadillac, etc etc. He can count to 20, he knows his ABC's...lately I have been pointing to many many different things asking, "whats that?", and 9 times out of 10 he knows...My son is learning...My son is amazing me...He is doing SO much more than the doctors once told me he would do. He is walking, he is talking, he is learning. And hes doing all of this while going thru surgeries here and there..6 surgeries for a 3 year old might not be a record breaker, but its a lot still. Agenesis of the Corpus Callosum and Hydrocephalus might he what his diagnosis is, but its not who he is.

A response to a question..

Yesterday I was asked "How is Carter doing since last week?"...and I responded that he has been incredibly well since the last 'incident' we had on Wednesday. For those of you who follow, you know that we were all packed up and ready to go to Omaha last wednesday morning cause Carter was showing shunt malfunction symptoms. Well, let me tell you the events of that morning.
Cody depressed Carter's shunt bubble and it was extremely slow to refill..which was an 'oh no'...Cody went and showered that morning, came back up and again depressed Carters shunt bubble. This time it refilled much quicker. Praise the Lord! There was indeed, no doubt in our minds, a blockage in the tube that drains all the extra CSF fluid from Carter's brain...it had miraculously pushed through when Cody depressed his bubble..What a relief..Carter started acting like himself and by two hours later, you wouldnt have known the incident even happened. We know that God is faithful, even if we would have had to go to Omaha again, God is faithful. He is holding Carter in His hands, that is so clear to us. Just yesterday we visited a neighbor who is back in the area right now after being gone for a couple of years..She looked at Carter and said' He is doing good!"..It is so great to hear that from people! Carter is doing well! Yesterday a certain pretty young, blonde Occupation Therapist visited our house as she does every month and Carter did things for her with much more ease and you could tell she was thrilled! He did blocks, strang large beads on a straw type rope, did a piece of a puzzle, etc..Carter is developing..Comprehensively, Occupationally, Physically..and we couldnt be more happy for our son.
The other night Camden was sleeping in his crib already and Carter said "He's in time out in the boy's room!"...obviously thinking that Camden got a 'time out' since the bedroom door was shut..How funny!
Gross motor wise- let me update you. Carter still crawls..let me tell you that..He will crawl if he wants to...Yes, Carter CAN WALK...but Yes, Carter still falls down..But as my mom says "We don't know how Carter feels or how we would feel if we had a big pocket of fluid on our brains messing with our equilibrium. If you see Carter crawling, its because he knows his self and his capabilities at that moment better than we do..He may be feeling dizzy and so he crawls..but Yes, he does walk and is getting much faster at walking!
Thats all I have for now! God Bless!

Its been awhile...since I have blogged!

Hello everyone...It seems like forever since I have updated my blog. I think that both good and bad things have happened since the last post...Lets start with the good. Carter has grown!
We went to Carter's Pediatric Endocrinologist back in february...from August 2009 to February 2010, Carter grew a whole inch! It was so exciting because that meant that growth hormone treatments were not going to happen (atleast now they aren't), because Carter was growing finally after a year of hardly any growth. Carter was between the 3 and 4 percentile in August and climbed up a little bit when checked in February...Carter is now 37 inches!! I measured the little guy again this morning and Carter has literally grown another inch and a half since the beginning of February! YAY! That puts him at the 16th percentile- which is definitely a step in the right direction. With Cody being 6'5'' I just didnt believe that Carter was/is going to be short. :) Maybe not as tall as Daddy but definitely taller than me (5'5"). Some of you may wonder, "Well why worry about this?"...well because the pituitary gland which controls growth is near where he has his fluid on the brain..so yes, there is some cause for concern! Now I am just praying for his feet to grow for more stability for walking, they are still smaller than the average 3 yr old.
The bad: Let me first tell you that I am happy to report that there has been more good than bad, but some bad has come our way..Its the pain that Carter experiences and has to deal with. No, this is nothing new. But, its been a little different lately. Yesterday, Easter day, Carter kinda screamed out of no where and covered his eyes with his arms...he had a headache..It was very evident. Poor little guy. We gave him tylenol, but he went on like this for a while, clenching onto his Daddy. Usually the pain he experiences is gone just as quick as it lasted, but that was not the case for him yesterday.. Please pray for Carter, he was so worked up and in so much pain that he wouldnt even tell me what was hurting..there have been times in the past where he would point to where it hurt.
CAMDEN~
Camden is getting around...He has been crawling like a little professional, pulling up to anything and everything and cruising occasionally. I have even caught him standing in the middle of the room..he let go after pulling up. Its really cute to watch. He definitely is getting more attitude and personality now also. Carter and Camden are playing together much better too lately, although I still have to keep an eye on Carter so he doesnt push Camden. Guess what Camden did the other day..Yep, you guessed it. HE pushed Carter! Ornery boys I tell ya!
Next Monday is a trip to Omaha for Carter. Please for a good check up with his neurosurgeon.
Thanks for all your prayers!