Carter's Story

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This blog is a look into the life of our nearly six year old little boy, Carter. When I was just six months pregnant, an ultrasound detected that Carter's brain was missing its corpus callosum and he also had hydrocephalus. Doctors even told us that our little boy may not walk, talk, etc... but abortion was never a choice for us because we firmly believe that God does not make junk. We look at Carter now and praise God for the miracle he is! Carter loves to play, and he CAN walk and talk! Carter is continually proving himself to us, to our families and to his teachers. I have been priveleged to be able to stay home with Carter, Camden and Elliana since November of 2006 when Carter was born. I am so thankful I am here to hold his hand and face his challenges right along side of him. A mother's love only grows, this I know. Some days may be challenging but always worth it at the end of the day.

Carter

Carter
Born November 20, 2006

Thursday, January 21, 2010

So much hope, yet so much uncertainty at times

I am writing today as I am sitting here in my living room observing Carter. We are listening to Serious XM, the Message.. Carters favorite. I really believe that he knows ALL the songs that they play on this channel..I hear him sing a word, a lyric, or even most of the song at times. Its wonderful. In listening to this I feel such hope, such excitement, such " I knew he was capable!" He looks at me with his lit up eyes and continues to sing and I feel a tear fall down my cheek. I think, "Thank you Lord for the gift of this child, what a blessing he is." Even as I sit here to type out my thoughts so that you can read them, I cry. I love my boys so much and even though there are times where I feel like I dont have any patience or cant take anymore, the truth is I would rather be here at home with them, then anywhere else. To add to the miraculousness of my son (Maybe Im biased, I dont think so), he starts dancing- or bouncing at times while singing. Its the greatest. Who knew he would have such a melody in his heart. My thoughts go back to when I was pregnant and found out that my son might not walk, talk, or do much of anything..Wow, if those doctors could see Carter now...God gave Cody and I two gifts (so far): Carter and Camden. I really have no idea what I would do without my boys, I love them more than words can say.
On to the topic of his new medicine, Neurontin..It has been already causing dizziness for him. They told me the side effects could be dizziness & sleepiness. So far I have picked up on the dizziness. Once his body gets used to the medicine, it should get better. I pray that this medicine helps Carter and that it has no lasting side effects. Could you please pray the same? I want my Carter back, the Carter that was more steady just three months ago. The Carter that didnt get sick when he saw his brother eat or whose eyes didnt roll back (this is the worst)..The Carter that didnt have these 'noises' that he couldnt control. To make it even worse, sometimes after he does the noises and the eye rolling (which are usually hand in hand), he says "funny.", like he has to hide them or make me think hes laughing.
A praise I have is, Carters SLP (speech language pathologist) wants Cody and I to keep track of Carters sentences of 3 words or more..We set a goal in November of 100 by the end of 2010. Carter is already at 40. We are so proud of him and all that he is accomplishing despite all the symptoms that could have set him back. Way to fight Carter!
Also, Carter is practically running at times now too. Its quite scary to see him go that fast. "Slow down!" I always tell him!
Please be in prayer for Carters next ped endocrinology appt (Feb 1st in Sioux Falls). We are thinking now he doesnt have growth hormone deficiency because he has recently grown...but do think he still has an underlying thyroid problem. Please pray that the doctor will get to the bottom of this. He has been on thyroid med, but they took him off...Now his TSH has been borderline.
Thanks again for your prayers!
Gods Love, Jessica :)

1 comment:

  1. You know I'm praying I'll call you either tonight or tomorrow. I'm so glad to hear he got the new meds without too much hassel!

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