Carter's Story

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This blog is a look into the life of our nearly six year old little boy, Carter. When I was just six months pregnant, an ultrasound detected that Carter's brain was missing its corpus callosum and he also had hydrocephalus. Doctors even told us that our little boy may not walk, talk, etc... but abortion was never a choice for us because we firmly believe that God does not make junk. We look at Carter now and praise God for the miracle he is! Carter loves to play, and he CAN walk and talk! Carter is continually proving himself to us, to our families and to his teachers. I have been priveleged to be able to stay home with Carter, Camden and Elliana since November of 2006 when Carter was born. I am so thankful I am here to hold his hand and face his challenges right along side of him. A mother's love only grows, this I know. Some days may be challenging but always worth it at the end of the day.

Carter

Carter
Born November 20, 2006

Saturday, January 16, 2010

Some answers from Omaha.

So yesterday, Cody, Carter, Camden & I left at 6 am to make it to Carters first appointment in Omaha @ 9 am. His appt was with a Dr. Legge, a neuroopthamologist. This glorified eye appt went really well, and Cody and I were quite impressed with Dr. Legge. He is a very intelligent man and was really good with Carter, Carter didnt cry once for him (only when nurse put drops in his eyes!) A praise is that Carters eyes actually improved sight wise, he was last checked @ 5 months old and the doctor said his eye sight improved by 50%! YAY! Still has astigmatism in both eyes, but thats no big deal. There was no sign of cranial pressure and all was well, and he doesnt need to see an eye doctor for another year. This doctor was talking how he would need and like to see Carters last scans of his brain, and I got out our CT pics that we had...Those didnt show him much, and then Cody piped in saying, "Well, we have that cd."..Thank the Lord we had that cd! Dr. Legge looked at the disc of Carters CT scans and found that part of the brain didnt look equal in the middle...He had a special name for this area and I don't remember. He did call this a midline or mid brain disturbance. This area being disturbed can cause all of the symptoms that Carter has been experiencing; nauseasness, vomitting, drooling, dizziness, eye rolling/fluttering, etc. Wow, I can't tell you how grateful I was to have this doctors knowledge. He mentioned that there is some medicine that Carter maybe able to be put on (if the neurologist agrees) that would 'stabilize' his brain. He said that this is hard to treat though, so please pray that Carter can be put on this and that it would help him!
Our next appointment was with Dr. Hellbusch, a neurosurgeon that we have been seeing since Carter was born. Carter first had a CT scan (and did pretty well- normally he really fights!) Dr. Hellbusch looked at the scans and said that the fluid on Carters brain looked pretty much like it did last month and that there was no sign of his shunt malfunctioning. We told the Dr. what we learned from Dr. Legge and how he thinks Carter should be put on a brain stabilizer. This doctor agreed and was going to send info on to Dr. Pavcovik, the neurologist. Putting Carter on this medicine is ultimately up to Dr. Pavcovik, whom Carter just saw last month when he was experiencing the same symptoms. We are hoping that Dr. Pavcovik doesnt need to see Carter again, but can just prescribe this medicine for Carter. If he has to see Carter again, it could be as much as 2 months out (Which I would argue!) I am not gonna sit here any longer watching my son have all these awful symptoms.
So, by 12:30 we were done with all Carters appointments. We then went to Younkers and spent too much time there, but Carter was walking so well! He was going everywhere! Cody followed him and said that women were "ooo-ing and aww-ing" him..and Cody would tell people that Carter was taking him for a walk. :) After Cody and Carter went up and down the escalator 6 times, we took off for Sioux City. My mothers ring had gotten repaired and was ready to be picked up. We looked at some more carpet samples from Mozaks, which was great, and then went and ate and were on our way home. It was nearly 9 by the time we got home, we all crashed! What a long day. We were so happy that we are getting some where though. If there is a medicine that can treat and help Carter, I am all for it. My boy needs some relief. I am gonna call the neurologist Tuesday if I dont hear from them on Monday.
Thank you everyone for your prayers. God is good and if treatment is as simple as medicine right now, thats great with me. Anything is better than having to put Carter back into the hospital and/or having surgery.

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