Carter's Story

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This blog is a look into the life of our nearly six year old little boy, Carter. When I was just six months pregnant, an ultrasound detected that Carter's brain was missing its corpus callosum and he also had hydrocephalus. Doctors even told us that our little boy may not walk, talk, etc... but abortion was never a choice for us because we firmly believe that God does not make junk. We look at Carter now and praise God for the miracle he is! Carter loves to play, and he CAN walk and talk! Carter is continually proving himself to us, to our families and to his teachers. I have been priveleged to be able to stay home with Carter, Camden and Elliana since November of 2006 when Carter was born. I am so thankful I am here to hold his hand and face his challenges right along side of him. A mother's love only grows, this I know. Some days may be challenging but always worth it at the end of the day.

Carter

Carter
Born November 20, 2006

Monday, August 31, 2009

Results from Carters Endocrinology Appt.

Well, Dr. Karmazin just called me back with Carter's blood results from blood taken on the 20th. I was a little nervous at first to actually hear his voice, not one of his nurses, but maybe this is standard at their office? Carters IGF1 (growth hormone) came back at a 35..Normal zone for his age should be between 30-122..so he is on the low end but doesnt need to start growth hormone shots at this point. He will be rechecked in February when we go back for a follow up appt.
Dr. Karmazin wants to stop Carters thyroid medicine right now also. He says that Carters thyroid issue may not be the same type as mine. His issue may come because his central pituitary gland may not be sending enough signal to his brain. Carter will have to be re-checked in 2 months for this.
So, overall the news we got from the Dr. is positive..Carter is only 2 (almost 3!) and so we have plenty of time to see if he grows. His growth potential based on bone age is also good.
Thats about all I know, more later.

Wednesday, August 26, 2009

What to say?

We are home today for the second day in a row..kind of nice..and its beautiful outside! We have no ac running and its about 68 degrees! Carter and Camden had a nice nap...Camden is a growing boy and has been napping more lately...I measured him monday and he is 25 3/4 inches! This puts him at 97% on the charts for height (weight is also at 97% based on 16.5 pds)...What a bigga boy!
Carters weight is up to that point also but the concerning part is that Carters height is only between the 3-4% mark...The thyroid condition is being further investigated by his new wonderful doctor but also checking all the growth hormone 'stuff' in his blood...I am hoping to hear back with news sooner than later...Its been nearly a week and they told me a week and a half! I dislike having to be patient! (Patience is sometimes where I lack!)
Not too much has happened since I last blogged...But I did want to share that Carter showed off some for his PT! Yay Carter! He did some walking for Barb...She kept having him do walking exercises...sometimes he gets in a hurry...but he did great today! Also did some in place marching (like a soldier) for her...I got a call from Dickinson County DHS---Carter has been accepted for the Ill and Handicapped Waiver...after reading some about this online, I have mixed emotions...It actually makes me feel sad because Carter is not MR...I like the waiver for the fact that it has automatic Medicaid..I HATE the waiver for the fact that I feel like my son is smarter and is going to overcome this 'disabled' status...You know, I would rather have a son running around and bills to pay than financial assistance and Carter not walking...I hope and pray I can find some peace on this.
In a mothers eyes (mine), Carter is BLESSED, HAPPY, COMEDIC, DETERMINED, INDEPENDENT, etc! My prayer is that this next year he could be filled with so much more knowledge to prepare him for preschool one year from now. ..I might check into him starting January 2011 instead of Fall 2010..if its possible...that way he will be 4...? Like I said, if its possible.
Will blog more when I hear the blood results from his pediatric endocrinologist...Maybe still this week!?
Thanks! Jessica

Friday, August 21, 2009

Our trip to Sioux Falls

The trip was overall a really good trip..Mom and I got to do a little shopping so that was fun. Carters appointment with his new pediatric endocrinologist was much better than my mind thought it was going to be...I was actually getting anxiety right before his appt because his past doctor visits have been very traumatizing for him. Dr. Karmazin is an amazing doctor..he played with Carter first and earned Carters trust before he started checking him...they have child well life (or something like that) that came in and played with Carter and all that..His nurse Sarah played with bubbles with Carter (Carter loves bubbles)...and made the weighing and blood pressure check so much less stressful..As far as what we found out...Carter may not have a thyroid condition like me...he may have one, but for different reasons...we will know in a week or two...It is extremely rare for a boy his age to have a thyroid condition and so the doctor is checking everything..They did draw blood from Carter yesterday...they will check thyroid functions and all things related to growth hormone deficiency...they said it should take a week and a half to get some of these results back because they are sent all the way to california. If something obvious is found than growth hormone shots may start sooner, but if not (this may NOT be grwoth hormone) than his next appt is 6 months from now. I should say that Carters bone age in January (he would have been 26 months) was that of a 12 month old...and the other doctor in Omaha read his bone age as that of a 6 month old ( i guess!?!)...so potential to grow is still great I guess...this means according to his bones, hes got much growth ahead of him.
Carter has been doing much more walking already today! It is sooooooo exciting!
More to come!