Carter's Story

My photo
This blog is a look into the life of our nearly six year old little boy, Carter. When I was just six months pregnant, an ultrasound detected that Carter's brain was missing its corpus callosum and he also had hydrocephalus. Doctors even told us that our little boy may not walk, talk, etc... but abortion was never a choice for us because we firmly believe that God does not make junk. We look at Carter now and praise God for the miracle he is! Carter loves to play, and he CAN walk and talk! Carter is continually proving himself to us, to our families and to his teachers. I have been priveleged to be able to stay home with Carter, Camden and Elliana since November of 2006 when Carter was born. I am so thankful I am here to hold his hand and face his challenges right along side of him. A mother's love only grows, this I know. Some days may be challenging but always worth it at the end of the day.

Carter

Carter
Born November 20, 2006

Thursday, May 27, 2010

What a big boy!

Well..I have some good news to share..Carter has been sleeping in his own big boy bed since last saturday! Cody and I talked about switching rooms around in our house...We didnt have an ac unit for our upstairs because our central air doesnt seem to cool it up there like it should and so we hadnt really utilized our house to the fullest...well, now we are! Last saturday we switched rooms around...we brought the bunk beds that my parents got for Carter and Camden downstairs and took our bed upstairs! It was actually alot of work and was more like a 2 day process, but all worth it now! The hardest part was taking our armoire upstairs (just Cody and I)..I am not sure, b ut maybe because Carter is now sleeping in our old room he feels comfortable? Anyways, 3 out of 4 nights he slept completely sound..only woke up 1 of the nights and not for very long. It is so nice to be able to stretch out a little more in my own bed, you would be surpised at how much of a bed hog Carter can be! lol.
Anyways,everything is much more organized...Carter and Camden have their own rooms and mommy and daddy have our own space as well! I am actually loving it much more than I thought I would!!
Carter has been doing fairly well lately..He is amazing me at the new sentences he has been putting together..Yesterday morning he told Camden that he was making a mess..the other day he said "I hurt my toe, kiss it!"...In the bathroom he said to Camden "Get outta there Camden"...and also yesterday he said "Take the bags!" when we were leaving...like I have said before, the speech itself has been great, its the learning and comprehension that I am excited about...He will be in preschool in 3 months and I am excited and nervous at the same time! He has been proving to me though what a determined little fighter he is, both physically and mentally..Thank you Lord for such a persistant little man! I am sad to say that he had his last speech session with Wendy yesterday, which is because summer is here and he will get it in school this fall...We lost his PT, which makes me even more sad because Barb has had him since he was about a month old. :( His OT, Katie, whom he likes to flirt with is getting married and moving this summer, which I understand..and his teacher from the school never ever came and then I found out she quit...so I kinda feel like we are in limbo right now...I do work with Carter myself with all areas, but it is nice to have others here to help Carter along.

Thursday, May 13, 2010

A new revelation..

Over the past couple of days, in preparation for Cody leaving for Canada...I have been constantly reminded how much I love my husband and my boys. Thank you Lord for giving me this reminder in a new and different light.
I have thought about how very different my life could be if I hadn't met Cody 8 years ago..and how very blessed I am to have him in my life. Thank you Lord for my husband and for my two boys.
Today as I sat on the couch, feeding Camden, he fell asleep..so peacefully. I couldnt help but think what happened exactly a year ago today, Camden was born! And as I look at him my heart skips a beat because of the happiness and joy Camden has brought to me..I think, "Wow, Lord..you have entrusted these two wonderful little boys to me and Cody." Carter at the same time was getting exhausted...he went and got his pillow and brought it to the couch...he wanted to hold my hand. The next time I looked at him, he was sleeping! I can't help but also think of my Carter today while reflecting on the past year since Camden was born. Carter has been through so much and I truly think that everyone could learn something from Carter if they spent time with him. He is a miraculous little boy. How I love my family.
Thank you Lord for this new revelation when looking at my family..they mean more to me than words could ever say!

Tuesday, May 4, 2010

A response to a question..

Yesterday I was asked "How is Carter doing since last week?"...and I responded that he has been incredibly well since the last 'incident' we had on Wednesday. For those of you who follow, you know that we were all packed up and ready to go to Omaha last wednesday morning cause Carter was showing shunt malfunction symptoms. Well, let me tell you the events of that morning.
Cody depressed Carter's shunt bubble and it was extremely slow to refill..which was an 'oh no'...Cody went and showered that morning, came back up and again depressed Carters shunt bubble. This time it refilled much quicker. Praise the Lord! There was indeed, no doubt in our minds, a blockage in the tube that drains all the extra CSF fluid from Carter's brain...it had miraculously pushed through when Cody depressed his bubble..What a relief..Carter started acting like himself and by two hours later, you wouldnt have known the incident even happened. We know that God is faithful, even if we would have had to go to Omaha again, God is faithful. He is holding Carter in His hands, that is so clear to us. Just yesterday we visited a neighbor who is back in the area right now after being gone for a couple of years..She looked at Carter and said' He is doing good!"..It is so great to hear that from people! Carter is doing well! Yesterday a certain pretty young, blonde Occupation Therapist visited our house as she does every month and Carter did things for her with much more ease and you could tell she was thrilled! He did blocks, strang large beads on a straw type rope, did a piece of a puzzle, etc..Carter is developing..Comprehensively, Occupationally, Physically..and we couldnt be more happy for our son.
The other night Camden was sleeping in his crib already and Carter said "He's in time out in the boy's room!"...obviously thinking that Camden got a 'time out' since the bedroom door was shut..How funny!
Gross motor wise- let me update you. Carter still crawls..let me tell you that..He will crawl if he wants to...Yes, Carter CAN WALK...but Yes, Carter still falls down..But as my mom says "We don't know how Carter feels or how we would feel if we had a big pocket of fluid on our brains messing with our equilibrium. If you see Carter crawling, its because he knows his self and his capabilities at that moment better than we do..He may be feeling dizzy and so he crawls..but Yes, he does walk and is getting much faster at walking!
Thats all I have for now! God Bless!