Persistance Pays Off!

So, after my last blog a few things happened...first off- I remeasured Carter to find he wasnt quite as tall as I had thought he was...He got very carefully and repeatedly measured @ 37 1/2 to 38 inches...and I thought he was 38 1/2...1/2 an inch to an inch may not seem like much..but in his world, it is.
After measuring Carter and feeling very disappointed in a certain doctor..I decided that I didnt think Carter should have to wait another month and a half. I called Sanford Pediatric Clinic and told them that Carter needed to be seen sooner. His height was @ the 5%, his weight at or above the 100% mark. His feet are the size of a 2 year old, and he will be 4 on November 20. I sobbed at wondering how hard his heart could be pumping, because all his weight seems to be in his belly-surrounding his major organs. I sobbed because his feet are supporting much more weight than they should be..Twice as much weight as other children with his foot size. He has already had physical set backs, and as his mom was going to try and avoid any un-neccasary delays to my best ability.
Carter's previous pedatric endocrinologist left early august and moved to Kansas...and because he was on the outs, seemed to kind of blow of my concerns as a parent. He was errogant, plain and simple. He frowned upon the calorie-reduced diet that I had started Carter on...thought it was too restrictive. Didnt think that Carter was 'that big' and didnt want to do anything other than keep waiting. He was leaving, so to my husband and I, he appeared not to care because he wasnt going to be Carter's doctor any longer anyways. His numbers for his growth hormone function were below normal, supporting my suspicions in July.
Since July, Carter has continued to gain weight but not grow taller...his feet havent grown in over a year, his arms and legs are shorter than other children his age, not helping his physical abilities..(ex: climbing stairs, bending down to his feet, etc.) I have watched him fall off the growing curve for two years and really dont want to have to.

What we found out yesterday: Carter's new doctor~Dr. Laura Davis-Keppen~ is a more knowledgable and competent doctor. She has been practicing since 1984. She reviewed Carter's chart while in with us, apologizing to us for not having looked at his records prior. She first talked with my mom and I about Carter..our concerns. After looking at his charts, she saw that Carter has tested under the normal range for his IGF1 level in July, like we were aware of. She then noticed a time before that, that he had also tested under normal, but even more so..which we were NOT aware of. Dr. Karmazin never told us. Disappointment came over me- disappointment in the previous doctor but yet a bit of relief because that will hopefully aide in getting Carter the help and treatment he needs. Carters height measured at 38 inches and his weight at 50.9 lbs!! His BMI is clear the heck off the charts, which is her major concern. She believes his brain diagnosis is what is causing lack of growth. The pituitary gland is very close to the part of the brain that he is missing, his corpus callosum. She seems to want to get started on growth hormone asap and see what it does for Carter. The paper work is getting started today, however this takes a few weeks. Also, to further support the insurance company to pay for this high cost medicine, she ordered another Igf1 level, thyroid check, diabetes screen, and bone age test (x-ray his left hand)..This all happened yesterday right away. What a relief.
Carter will be starting here in a few weeks on a growth hormone medicine that is pre-filled and ready to give daily, in the form of a shot. A nurse will come to our house to show us how to properly administer this medicine. I am so thankful that persistance is paying off. I am so thankful for a well educated and experienced doctor. I am so thankful for my mom to support us by going with when Cody couldnt. I am so thankful for a determined 3 year old who let the nurses mess with his again yesterday. I am so thankful for many things.
Also, I should mention that I am back to calorie counting with Carter. A dietician would like to see his calories restricted to under 700-800 per day. If Carter is going to grow taller, they would like to see his weight not also increase. This is fine, I am more than happy to measure things out because it is in Carter's best physical interest.
Sorry if parts of this blog maybe didnt make sense, it only took me an hour or so to write because of interruptions with my boys!! lol
Thanks for reading!