Carter's Story

My photo
This blog is a look into the life of our nearly six year old little boy, Carter. When I was just six months pregnant, an ultrasound detected that Carter's brain was missing its corpus callosum and he also had hydrocephalus. Doctors even told us that our little boy may not walk, talk, etc... but abortion was never a choice for us because we firmly believe that God does not make junk. We look at Carter now and praise God for the miracle he is! Carter loves to play, and he CAN walk and talk! Carter is continually proving himself to us, to our families and to his teachers. I have been priveleged to be able to stay home with Carter, Camden and Elliana since November of 2006 when Carter was born. I am so thankful I am here to hold his hand and face his challenges right along side of him. A mother's love only grows, this I know. Some days may be challenging but always worth it at the end of the day.

Carter

Carter
Born November 20, 2006

Friday, October 30, 2009

An unexpected few days...

Its Friday and I am so glad to be home! We were in Omaha all day wednesday and thursday because of problems with Carter's shunt. Wednesday Carter woke up with nauseausness (sp)...He 'spit up' on his pillow...and I didnt think much of it cause he always has his hand in his mouth..I jsut figured he gagged himself or something. Well, he kept getting sick..the bile (yellow stuff) coming out of his stomach...he had NO temp...I usually like a temp cause then I know its most likely not his shunt..I quickly showered and kept watching him...he was very clingy to Cody and sleepy..and kept getting sick every 15-20 minutes...Not good..so scary. I quickly packed a bag about 10 to 8:00 and got the kids in the car and left. I called trimark on the way there to try and get an appt...they were full and told me 1:20...that seemed like a year away and told me to take him to ER...well ER has taken 3 hours in the past and I didnt want to wait if it was his shunt..I was upset! Well, my mom happened to have a doc appt at that time and she went and 'talked' to them..they ended up working Carter into the schedule..I was thankful. After Dr. Schultz saw Carter, he sent us on to Omaha..his CBC was normal, no temp, etc. We got to Omaha around 12:30 and they did a CT scan right away. We found out that his shunt was malfunctioning..again...Here comes surgery #5 I thought..I was sad and wished I could take Carters place. Dr. Hellbusch, Carters neurosurgeon scheduled surgery for the following day...We decided to admit Carter at UNMC and hydrate him right away, he was drinking anything...Carter started acting a little better later on, but still not quite himself. A CT scan was again performed the next morning..Dr Hellbusch came to see us about 20 minutes later and said, "the scan looks like it did before'...back in July....Carters shunt had started working and fluid started moving like it needed to! What a miracle! I was shocked and thankful! Wow. What happened is the shunt pressure needed increased a little because the catheter in his brain was callapsed down on by the ventricle where his fluid is..They adjusted the flow of the shunt and are hoping that this should help and he wont have this problem again. We were able to go home last night at 6 after Carter was playing and eating normally...I reminded myself to never take life for granted. I think I cried the whole way to Omaha..and was asking "God, why?"..Carters been through so much already and hes not even 3! I LOVE my ornery little boy...and I will take ornery over lathargic any day! So glad we are home!!

Wednesday, October 14, 2009

Its been a while

It has indeed been a while again since I have blogged. The last couple of weeks we have battled some colds and then yesterday we battled the flu (Carter did)...There really hasnt been too much going on. I am thinking we are on the road to recovery health wise..and am glad..Anytime Carter gets sick (throws up)...we have much more worry...He has a shunt and so one of the signs of a malfunctioning shunt it vomiting...and beings he has had 4 surgeries (all shunt related) we have good reason to worry! Carter is nearly back to his usual self tonight, I just pray its gone for good and doesnt make a second showing like I have heard it does!
We started playing Wii after a long absence and Carter is so much more observant that what we are doing ties in with the tv..its fun...he cheers us on and everything...tells us "nice approach" when golfing and more! :)
He has been of course doing lots of walking..I am excited for him to show off for his PT Barb, who hasnt seen him in a couple of weeks cause of sickness..I love watching him walk. He has also been requesting "Jammies" song (Go Fish) and "Monkey" song (five little monkeys jumping on a bed...) He knows practically all the words to these songs and many many more..Its truly incredible.
Camden is 5 months already! As I mentioned in facebook..hes no baby anymore...(okay, not completely!)..hes my little 18 pd 27 1/2 inch, rolling, cooing, smiling, laughing, cry if momma leaves the room, machine..I just love him..Did I mention his love of jumping? What would we do without his jumper!?
Anyways, not too much to report on. Normal stuff!

Saturday, October 3, 2009

Getting more brave!

Carter hasnt been wanting to be in carts lately when we are shopping..He wants down so that he can work on walking... :) Its been great...Today at Sears he checked out lawn mowers, snow blowers and some refrigerators! LOL. We just kinda let him explore and broaden his horizon a little, within reason of course..
He started to get a cold this past wednesday..poor little guys nose is like a faucet....and so now his nose is sore...he doesnt want us to touch it! Benadryl gives him some relief at night but not really during the day (we dont want to mess up his sleep as it makes him very sleepy!)..I hope and pray he is about done with this cold..He did get a flu shot yesterday.
Today we got him a potty chair (portable)..and he went potty in it tonight for the very first time..he was really proud..Hes doing great going potty but I just need him to start saying "Mommy, I need to go potty!"...that would be awesome to have him start telling me.
Not too much to write about lately...Life has been pretty good.